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All is not as it seems

Small candle
Just as a light starts to shine, the darkness of grief descends once again

I had been warned that the second year of grieving could be worse than the first. I did not believe this as overall these last eleven months after the first anniversary of Michael’s death have been ok, and sometimes more than ok, with moments of real joy and sense of achievement and progress outweighing the dark moments.

But then I had not factored in the Christmas season, never my favourite before Michael died, so if I could confine it to Room 101 now I would. But it seems there’s no escaping the general atmosphere of jollity attached to December, believe me I’ve tried, it’s hard work.

It’s not that I’m a Scrooge but I have for quite a few years now had a feeling that all the excesses and seemingly hedonistic gift giving was so out of step with the reality of a huge proportion of the world’s population, it felt somewhat false and wrong.

But I digress…

I have been busy living and helping my children thrive rather than merely existing and in that process the grieving got pushed to one side, “don’t have time for that” I kind of said to myself.

As time has started to draw nearer to Michael’s second anniversary I have the inevitable hump of Christmas and New Year’s Eve (also Michael’s birthday, he would have been 58 this year) to get over. I am finding that with more time and a clearer mind to reflect, the grief monster has once again reared its head, grabbing me by the throat and pinned me to the wall with a very clear message: “you will grieve, you will feel this pain, because you cannot run away from it forever”.

So I find myself unable to function and not wanting to make decisions, wanting to simply wave some kind of magic wand to make this month disappear from the calendar, wanting to hide, as any form of human contact right now is a painful reminder of the man whom I loved, still love and who is no longer here.

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The performance

The performance

The curtains rise up

You start your act

Your lines delivered

With confidence, you enchant

The audience is wrapped up,

Captivated, entranced

But, wait! Have you stopped to ask

Who is writing the script?

Who is directing the cast?

And how comes you are

Part of an act

In which you’ve had

No say, no choice, no freedom

To write?

And whose performance is it?

You ask

And why must you stand up,

Pretend, act?

Whose life are you living?

The one you want

Or are you really just following

The words, the scenes, the acts

Neatly typed up

Convenient, conventional, acceptable, mainstream, banal

Where are your dreams, ambitions,

Hopes, intuition?

All gone, hidden, forgotten, buried, suppressed, discarded, incognito?

Why the performance, the acting?

Are you scared, frightened?

Of what you’ll find

If you step out, walk away from the limelight?

Your soul, your mind, your heart

What’s hiding inside them?

Dig deep, find out, discover

Reveal your own script

Write your own lines

Own your act

Cause life is not a rehearsal

And you have no understudy

Get off that stage

Find your own show

Don’t let the curtains fall

On You

Be bold

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Fog

My thoughts are locked

Completely blocked

Don’t seem to know

My words anymore

I’m stuck in limbo

Ideas revolving

Dissolving in

A murky, thick fog

I can’t make out

Nor shape or form

The flow has gone

I know not where

I’m going to drink

My favourite tipple

Would it work magic?

I doubt it

But at least 

I will feel sleepy

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Unexpected, unsolicited, relentless…

I wrote this post on 29 January 2017, but never published it, it was too raw, too difficult for me to read back, let alone to allow it to be read by people out there in the ether of the online world.  I have done a lot of personal healing and growing since this very bleak day earlier this year, so now I feel I am ready to let it go and allow others to see the raw emotions that made me write it in the first place.

It was spring and something changed; I had survived my first winter in a foreign land. Cold like I’d never experienced in my life, the kind that gets inside your bones and sinews and no matter what you do it never leaves you. The culture shock! I spoke the language but somehow couldn’t communicate with people, words seemed to have a different meaning to the one assigned to them in the dictionary. Sarcasm, irony and mockery were the order of the day but it made understanding people’s intentions nigh on impossible, were they being friendly or trying to take advantage of me? I was working so hard just to keep the wolf away, money was tight (sometimes not enough to feed myself) and yet I knew that if I could hang on for a little longer I would make it a success. I hadn’t migrated nearly five thousand miles searching for a better life just to flounder at the first hurdle.

We met one Sunday morning, I had travelled from up north to London; for the first time since arriving in this country I had the opportunity to see the big city and marvel at its amazing buildings new and old and bear witness to what every migrant must feel when faced with its famous streets, that indeed they are paved in gold! Oh the opportunities!

My friend, your friend, our friend, had arranged a meet up for breakfast at your local cafe, where we were to meet you and his sister.  I assumed you and our friend’s sister were a couple, so was taken aback when your attention seemed to be solely directed at me and my daughter, but hey I was in a foreign land and when in Rome do as the romans. So I reciprocated by directing all my attention, out of politeness, to you, ignoring our mutual friend and his sister. That didn’t go down very well with our friend, so instead of building bridges I had burnt one. Of course I didn’t realise at the time that our friend’s interest in me was more than for friendship, I was naive.

Unexpected, unsolicited, relentless… you made your way into my life and took a keen interest in everything I did, planned and dreamt of. I had no idea what your intentions were and had far too much turmoil in my personal life to really pay attention, so I just dismissed your efforts. I didn’t know where admiration ended and mockery started, so I remained distant. But you didn’t give up, nowadays your behaviour would be considered stalking, back then it was just sweet, I was naive.

I was not looking for a relationship, I was already in one which I wanted desperately to end. So no jumping out of the pan and straight into the fire, I said to myself. But you wouldn’t give up, it was so hard for me not to give in. And when I did, your love was beautiful, gentle, tender, all-consuming, loyal; I was not used to it, until that point in my life love had been hurtful, deceiving, betraying. Your kind of love made me feel scared because it was so different, unexpected, unsolicited, relentless.

You showed me how to be kind to myself, how to accept the kindness of others, you brought calm to my soul and held my heart safely in your hands. You made me happy. You made my world complete. You made me a better person and because of your love I was able to love you back in the same beautiful, gentle, tender, all-costuming and loyal way you loved me.

And so we started our lives together, enjoying each other’s quirks, making each other stronger, making plans, falling in love.  You were in a hurry, you said, you were not getting any younger and until you found me you never thought you were going to marry or have a family; you were so happy to be a father to my daughter and proclaimed that I was the best mother you had ever met. Marriage, for better for worse, for richer for poorer, in sickness and in health, till death do us apart, we promised; followed swiftly by two beautiful children and making our forever home together, I still hungry for adventure, you content with allowing me space to follow my dreams, because as you said, yours had come true the day we met.

And so fifteen years of domesticity, every day hum drum, paying the bills, bringing up the children, “who is doing the shopping this week?”, “shall I cook tonight?”, “it’s in the calendar, so it’s happening”, just trying our best to keep the love alive.

And then everything changed, dammed blasted alien took hold of you, unexpected, unsolicited, relentless, invading your body and your soul. It attempted to destroy everything we had worked so hard to build together. It really did try its hardest to get in between us, and I had to put all my strength into reminding you of our sweet, tender, all-consuming love; our promise was tested, oh we were tested! And just as we thought there could be no more tests, we had shown our promise to be as strong as iron, the same invading alien took hold of my body. It devastated you, as you knew the alien was robbing you of your life and your strength at the very moment when I needed to be cared for, yet you couldn’t be there for me. Your body was ravaged, where once stood a strong, athletic, powerful man, the alien consumed you, leaving a paralysed mumbling wreck, taking you away from me, from your children, from your friends, to a land where we are not allowed to visit

And now you’re no longer here, I try so hard to hold on to the memories; eighteen years and yet all I can see is how everything changed.

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Visceral 

Storming her world
With sorrow’s wind and rain
She found herself enveloped
By a love so visceral
So vain

The kind that lashes
At the window pane
Incessantly, pulsing through
Her veins

Uncontrollably forcing
Its way in
Her heart, her mind
Her body
No longer belonging
To herself

Sin rima

¿Y dime por qué
te extraño tanto?
en la llovizna
cuando está nevando
Sin razón, sin rima
¿Por qué te extraño tanto?

¿Por qué te extraño tanto?
en el café, chismeando
Sin razón, sin rima

Dime, dime, dime
¿Por qué?
Extraño tanto
Tu manera gentil,
Tus ojos, tus labios

Aquí estoy, preguntando
¿Por qué?
Amore mio
Sin razón, sin rima
Te extraño tanto

No rhyme

So tell me why do I miss you?
When it’s cold
When it’s raining
There’s no rhyme 
There’s no reason 

Why do I miss you?
Over coffee 
When I gossip 
There’s no rhyme
There’s no reason 

Tell me why
Tell me why
I do miss you
Your soft, gentle
Manner
Your eyes, your lips
So delicious 

Here I sit
Thinking
Why do I miss you?
Amore mio 
There’s no rhyme 
There’s no reason

Grief with life in between

It has been a while since my last post, a lot of things have happened:

So this post is going to be longer than usual.
The thing with grief is that it is deceiving; it has often happened since Michael’s death when I think to myself that I am coping so brilliantly that I wonder what is it that people
complain  so much about the grieving process. And then as if to make sure I do not get so cocky about my own ability to overcome
adversity, POWit hits me squarely on the forehead and floors me, without notice, rhyme nor reason.

It is the smallest of things such as the fact that four years ago we were all in London enjoying the Olympic Games together as a family of five people, cheering on the amazing athletes and marvelling at their ability to perform at their sport making it look simultaneously easy and extremely difficult at the same time.

This time the Rio Olympics have brought home how different our lives are, without Michael here to watch the whole range of events, the little enjoyment I have experienced is always tinged with the acute sadness of his absence.

Meet Marlo, our puppy

A few months before Michael died, we were at the beach enjoying an unusual spell of warm weather; it was October 2015.  As we watched people walk by with a whole range of different dog breeds both youngest daughter and I begged him to agree to us getting a puppy.  It had been a recurring conversation whenever we went out for a walk, to which Michael always replied no; however this time the conversation ended differently, he said: “when I am gone, you can get a puppy, you can even call him Michael if you like”.

The night Michael died, our youngest daughter had been staying with friends.  She did not like visiting the hospice, as in her words “it was a sad place”.  I telephoned with the news that Michael had died, so it came down to our friends to tell her, after the initial shock and sadness, daughter reportedly said “it is ok as we can now have a puppy”.

IMG_7209So late in July we travelled to Brittany in France to collect our beautiful puppy, Marlo, he is a Brittany Spaniel.

He is the kindest, most placid and affectionate creature, very quickly establishing that I am the leader of the pack, to be obeyed and followed everywhere I go.  He manages to capture people’s attention when we are out walking by just looking at them with those beautiful puppy eyes.

He is a very quick learner (I have the dog trainer’s word on this one) and so far very well behaved when out and about; he is also exemplar at home, except when it comes to the sofa, what is it with dogs and sofas?

A birthday without daddy

So youngest daughter turned 12 in July.  We had agreed that Marlo would be her birthday ‘present’; however there had been discussions as to what she would like to do as a birthday celebration.

When it came to it she decided she did not want any fuss on the day, no birthday cake, no special event.  I understood how she felt.

I reached my 44th birthday this June and a combination of my birthday falling on Father’s Day and three weeks after major surgery, meant that I did not want any celebrations and instead wanted to scape as far away as possible from everything that reminded me that the love of my life is no longer here.

Whilst my daughter was unable to express her feelings about her first “without daddy” birthday , I could read the pain in her eyes, so we did exactly as she asked, nothing.

Time flies, yet stands still

On August 15th marked seven months since Michael’s death.  For some reason youngest daughter wanted me to watch “Miss You Already” which you might want to avoid if you or someone you love have been affected by cancer.  Of my three children, she has found it the most difficult to talk about her feelings during her daddy’s illness and after his death, so it took me by surprise that during the film she started talking about how chemotherapy had affected him, how she remembers the hospice and the effect his death has had on us.  The film acted as a catalyst for her; as I sit here analysing the experience I guess it became a non-threatening form of dialogue for her.  I was also surprised by how it was me who could not stop the streaming tears and had both the dog and my daughter comforting me.

I shed tears for Michael everyday, I am astonished by how many tears I can still produce and how very small things can set me off.  For example as we started out on our trip to France to collect Marlo, I had packed the children and our luggage in the car, stopped to get petrol and made sure I went through the “Michael travelling checklist”, money (tick), passports (tick), tickets (tick).

As we left the outer boundaries of our town the song we played at his funeral “Somewhere Over the Rainbow / What a Wonderful World” by Israel Kamakawiwo’ole came on the radio, cue streaming tears.  I couldn’t help but feel both his absence and his presence, as if this was Michael’s way of saying that what were about to do was ok, but of course he was not coming with us.

Every anniversary, landmark, event in our lives now has a bittersweet taste to it.  We are, as a family, doing things we did not do with Michael and it feels wrong and out of balance, an integral part of this finely tuned machinery is missing.   At times it feels as if the chapter of our lives together was somehow a dream that I made up, and then I look at our children and realise it couldn’t just have been a dream.

Running again

On July 30, nine weeks after major surgery, I ran at my local parkrun which are organised freeIMG_7930, weekly, 5km timed runs around the world. They are open to everyone, free, and are safe and easy to take part in.

I am a stats mad type of runner and keep a record for every run I do.  My personal best for 5km stands at 28:07 and it’s nearly a year since I set it.  Of course I was under no illusion that getting back to running after surgery was going to be easy and did not expect to even be able to complete the run, so I was very pleasantly surprised and proud to have completed the 5km without stopping in a time of 38:53.  I have been running twice a week since returning and have managed to get my time down to 32:48 in the space of three weeks.  I hope improvements will continue and aim to increase the frequency to three times a week very soon.

Sadly a side effect of my treatment is that my energy levels and reserves are depleted very quickly to the point that a couple of hours of normal activity, nothing strenuous, means I need to take regular naps during the day, so after running I am good for nothing for about three to four hours.  I am hoping this will eventually improve and I am in constant discussions with my consultant and specialist nurse as to the best way to manage.  I do not want to give up exercise or running, it makes me feel better in my head.

On the road

Oldest daughter is legal to drive, it was not easy and it took several attempts for her to pass but it is finally done.  Not that she is in any hurry to buy a car as to be able to insure young drivers in the UK a mortgage is required.

She had been practising her driving in Michael’s car which I had kept for that sole purpose, however as she prepares to return to university to finish her degree it is both impractical and financially non-sensical for me to keep hold of two cars, so “Stickers”, as it is affectionately known by us, has to go.

 

I didn’t choose bravery 

I belong to two private online forums, one for people diagnosed with cancer in their 20s, 30s and 40s, Shine Cancer Support, the other for people aged under 50 who are grieving the death of their partner, WAY Widowed and Young.

I’m yet to find one online forum combining both criteria, young cancer patient and young widow; I’m sure I’m not the only one going through the same circumstances but perhaps it would be too sad to find myself in an even smaller minority. [UPDATE September 2017]  I have since discovered that at least seven other young widows are going or have undergone cancer treatment, either whilst caring for their dying husband or since windowing…an exclusive club indeed.

In these forums we share our experiences in a safe, supportive environment with other people who are going through similar circumstances in their lives, without prejudices or fear of recrimination. It is remarkable how similar some of the discussions are in both forums. One that comes up often, and which seems to leave a lot of us riling, is people in general telling us how brave we are for carrying on with our lives, for still being able to function and I guess for not “having lost the plot”.

I want to dispel a myth, I didn’t choose bravery. The circumstances of my life just happened, there was no plan, heck who would plan such a life? Anyway, there was a time when I did have a neat little plan, an expectation which did not turn out as I’d thought.

But I digress, back to bravery.

No I am not brave.

Brave are the refugees fleeing war-torn countries, risking life and limb in the hope they will carve out a better life for their families in a far away land. Brave are the doctors and nurses who risk their health to care for sick people wherever their vocation takes them. Brave are those who speak out against injustice whichever form it takes.

I am sure there are many more worthy examples of bravery that you can think of.

No, I am not brave.

I continue with life as best I can. It is not perfect, and if ever you see me and have the compulsion to say “you are doing so well!”, please know it is just a facade, an illusion, the mask that I must wear everyday to make sure I am not left behind, because life still goes on. This is the performance I have become accustomed to so that I can make it through each day. As the saying goes, fake it ’till you make it.

This does not mean I never take the mask off or that I don’t stop performing, oh I do, everyday! And when I do, those around me get to see how brave really I am not. But I have had to plough through because there is no choice, because the world does not stop, because not carrying on would be cowardice, and that’s definitely a label I am not willing to carry.